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Human capabilities, mild autism, deafness and the morality of embryo selection

机译:人的能力,轻度自闭症,耳聋和选择胚胎的道德

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摘要

A preimplantation genetic test to discriminate between severe and mild autism spectrum disorder might be developed in the foreseeable future. Recently, the philosophers Julian Savulescu and Guy Kahane claimed that there are strong reasons for prospective parents to make use of such a test to prevent the birth of children who are disposed to autism or Asperger’s disorder. In this paper we will criticize this claim. We will discuss the morality of selection for mild autism in embryo selection in a hypothetical in vitro fertilization (IVF) situation where preimplantation genetic diagnosis is performed and compare this with a similar selection for congenital deafness. To do this we first discuss relevant human differences. We then introduce the principle of human capabilities (PC) and compare this principle with the principle of procreative beneficence (PB) introduced by Savulescu and Kahane. We apply the two principles to selection for mild autism and selection for congenital deafness. We argue that PC allows for the selection for mild autism but rules out selection for congenital deafness. PB will not give clear answers; the ruling of PB depends to a large extent on expected social, cultural and political developments. We will argue that PC is preferable to PB. We will discuss arguments for the value of mild autism for individuals who have this condition and argue that they are able to lead a life with human dignity provided autism-friendly social circumstances are present. Neither PC nor PB yields strong reasons for prospective parents to seek to prevent the birth of children who are disposed to mild autism spectrum disorder.
机译:可以在可预见的将来进行植入前基因测试,以区分严重和轻度自闭症谱系障碍。最近,哲学家朱利安·萨弗勒斯库(Julian Savulescu)和盖伊·卡哈内(Guy Kahane)声称,准父母有充分的理由利用这种测试来防止因自闭症或阿斯伯格疾病而生的孩子的出生。在本文中,我们将批评这种说法。我们将讨论在假设的体外受精(IVF)情况下进行胚胎植入前遗传诊断的情况下,选择轻度自闭症在胚胎选择中的道德,并将其与类似的选择用于先天性耳聋。为此,我们首先讨论相关的人类差异。然后,我们介绍人的能力(PC)原理,并将其与Savulescu和Kahane提出的生产性收益(PB)原理进行比较。我们将这两个原则应用于轻度自闭症的选择和先天性耳聋的选择。我们认为PC允许选择轻度自闭症,但排除了对先天性耳聋的选择。 PB不会给出明确的答案; PB的裁决在很大程度上取决于预期的社会,文化和政治发展。我们认为PC比PB更可取。我们将讨论轻度自闭症对有这种情况的人的价值的论点,并辩称,只要存在对自闭症友善的社会环境,他们就能过上具有人格尊严的生活。 PC和PB都不是准父母寻求防止患有轻度自闭症谱系障碍的孩子出生的强烈理由。

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